My Child on Genotropin

Today my husband and I made the decision to begin our 10-year old daughter Natasha on Genotropin, a form of human growth hormone. If she reacts favorably, she will inject the drug daily for the remainder of her growth period. Given that her current bone age is roughly 7 1/2 years, this could be upwards of 5 years.

In my web-based information search I found no personal stories of anyone who has used this drug or given it to their child. Therefore, I decided to begin this blog. In it I will chronicle our experience, including the nurse home visit, which augurs the first injection, our experiences with the Pfizer Bridge program which makes the drug, effects, side effects, emotional effects– whatever comes up. I hope this will help others and possibly establish a forum for parents who make this scary decision.

Background:

A few years ago I noticed that my daughter was very, very small for her size. I am only 4′9″ and my husband is 5′8″, so we never expected her to be a giant. Nonetheless, she seemed excessively small compared to other children. Additional cause for concern was the fact that I am shorter than either of my parents, neither of whom is very tall, which indicates a possible hormone deficiency in my background. As puberty was not that far off, my gut told me we should check this out.

An endocrinologist from Denver Children’s Hospital began tracking Natasha’s growth. After a year and a half it emerged that her bone age is delayed by a few years (good), but that she is not growing at the pace of a normal child (bad). Thus, every time we visit the doctor her projected height–based on parental actual height– falls. Upon the doctor’s recommendation, we applied for insurance coverage.

 Last week I found out we were granted coverage. Today three months worth of the drug arrived, along with a tamper-safe needle disposal bin. On Tuesday we will get our “starter kit,” which among other things contains the injection device, designed to look like a pen. Somehow I don’t think too many kids are fooled by this. I will also be contacted by a nurse, who will come to our home and teach us how to inject our child.

I visited the Genotropin official site and cried through the video demonstration of a young girl preparing  the drug and injecting herself with the pen. She seems to think it’s no big deal but, then again, that’s her job.

To me right now this is a big deal. I go back and forth between being very calm and completely freaked out. My husband has been out of town all week and I am loathe to talk about this to her without him, so at this point all she knows is that we have been approved by insurance. So far she took it pretty well. I think is beginning to be conscious of how short she is and wants to grow. Over the weekend we will broach the topic in detail, talking about the nurse coming etc.

 If anyone has any experience or comments or knows of any other blogs about this, please share.